Sunday, July 24, 2011

January Olivia Updates

Saturday, January 1, 2011 9:48 PM, CST
Happy New Year Olivia!
The last two days were better. She has fewer Desats. 12-30-10 she weighed 3.7 and 12-31-10 she weighed 3.7. We are hoping for a gain tonight. We still have yet heard from the nurse.
She had a fantastic afternoon while we were there. Olivia is getting 3 hours of cannula time twice a day. If she does well on the 3 hours, they will move her up to 6 hours twice a day. The nurse dressed her in a little fleece onesie today, she looked soooo cute! They had to up the amount of sodium they are giving her. She is still getting iron, sodium and caffeine daily. Her feedings are up to 32 mils with added protein and calories to it. My pumping hasn't got better. I'm not giving up tho. I keep hoping that it will happen! I believe that's all for now, I should update this as soon as I talk to the doctor/nurse becuase I forget everything by the time I get home

Monday, January 3, 2011 5:39 PM, CST
A quick catch up on Olivia's weight:
1-1-11 weight was 3.7
1-2-11 weight was 3.10
1-3-11 weight is 3.13!

It's been a few days, so it's time to play some catch up, I appologize if anything is duplicate or out of the timeline.

Olivia was put on two diaretics to help get the fluid off of her, the Doctor thinks that the fluid may be pushing up against her lungs causing her breathing problems. With two diaretics, there is a chance she may lose sodium. Well she did lose sodium so the gave her a sodium supplement (on top of the caffiene and iron). Day two on the Diaretics, her sodium dropped even lower. The Doctor ordered an increase in Sodium. Day 3 of the diaretics, her breathing appears to be better, however her sodium dropped again. The doctor took her off the diaretics.

Olivia is scheduled for a head scan today to recheck the bleeding and she has an eye exam on 1-5-11.

Olivia is scheduled to go on 3 hours of nose cannula each shift to help ween her off the CPAP.

They've also increased Olivia's feeding times. They are now feeding her constantly for 2 hours. They think she may have reflux. Hopefully this will help her!

Oh and the funny thing, Olivia pooped on Danny's hand! :)
  • Tuesday, January 4, 2011 5:29 PM, CST
    Happy One Month Birthday Baby girl! Sometimes I have top stop and take a deep breath and let reality hit me that I am a Mom. :) I like being called Mom, it's pretty cool. Maybe I should call Doris (Gar) Mom more often. :)

    Today Olivia weighs 4 pounds!

    Gar came to visit Olivia today.

    Olivia didn't have much scheduled for today except her head scan. Her head scan showed that she still has about the same amount of blood on her brain, however it is NOT bleeding. The doctor said that the blood will go away within time. The doctor also mentioned that her ventricles were on the Larger side of normal. She said this could be caused by some of the bleeding. They are going to keep watching it, they will most likely retest her in a few weeks. I'm not sure what side effects can/could happen if the ventricles remain large. I asked the doctor about the ventricles, but I'll be honest, I got very confused!

    She is also advancing to 6 hours (each shift) on her nose cannula. Yay! I decided to share and let Daddy hold her today. She had no blood work scheduled today.

    We also helped give Olivia get a sponge bath tonight. She loves having her hair washed. When it's freshly washed it fluffs up! It's so cute!

    I'm so proud of my little girl! She is growing so strong!

  • Wednesday, January 5, 2011 5:46 PM, CST
    Just a quick update on Olivia.

    Her blood gases came back GREAT! The doctor is hoping to extend her cannula time to 9 hours each shift in a couple of days.

    Olivia had her eye exam today. It showed that she has immature blood vessels and retnas. This is very typical for immature babies. They will recheck her in 2 weeks.

    They are lowering her feedings from 2 hours to 1 hour. They are hoping to be able to get her ready for regular feedings in a couple of weeks.

    Her sodium level was better today so the Doctor is decreasing the amount of sodium she is getting with each feeding.

    She also will get her Hepatits B shot today or tomorrow. :(

    They did the state required testing on her when she was born and everything was normal. They rechecked her at 14 days and she had elevated fatty acid levels. The doctor thinks this was from her IV fluids, but she is going to retest her in a couple of days. (not sure if it is called the "state required test" or if it has an actual name or not, that's what the docotr refered to it as).

    I got to hold her for 3 hours today. I love my snuggle time with Olivia!

  • Saturday, January 8, 2011 11:10 PM, CST
    I need to get better at updating this daily. Olivia was put on all cannula yesterday, today she was having a few to many Desats so the doctor dropped her back to 18 hours of cannula and 6 hours of CPAP a day. She was not happy about getting put back onto her CPAP. She has weighed 4.4 the last two days. She is now eating 35 mils of donor milk a feeding. She is still gettting iron and caffeine. Her blood gases have looked great the last few days.

    They are keeping an eye out for relux. She is starting to show some signs of it.

    Gar and Papa visited today. papa got to hold Olivia for the first time today.

  • Monday, January 10, 2011 8:03 PM, CST
    The weather has kept me from seeing Olivia today. I think we already have about 7 inches and are expecting more.

    Olivia has been doing really good the last couple of days. The doctor is doing a blood gas in the morning and if it is good, they are going to try her on all cannula again. I hope Olivia is strong enough. She's a tough little girl!

    The Doctors don't have much planned for her today. They said she has good color and is gaining an average of 2 ounces a day. She is still a little under weight, but they are hoping that upping her feedings to 36 mils will help her gain. Last night she weighed 4.7!

    Keep up the work baby girl. We love you!

  • Sunday, January 16, 2011 8:17 PM, CST
    Olivia has been really improving over the past week. She is now getting formula for four out of eight feedings. She is up to 42 mils. She is getting so big and changing every day. She weighs 4 pounds and 14 ounces. Her head measures 12.5 inches and she is 17 inches long. We will get new measurements tonight.

    I wasn't able to go see Olivia today because I feel a little under the weather. I don't want to chance anything. She had 2 new visitors this week that have been waiting very patiently to see her, cousins Chezney and Adrieanne. Lily, Gar & Papa also visited this week.

    Olivia is also on all cannula now. Her breathing is now in it's correct range and isn't too fast. She has few bradys and all most all of her Dsats are self resolved. She should have another eye exam on Wednesday.

    *** this just in from her daddy***
    Olivia is now 17 1/2 inches long and her head is 13 1/4 inches and she weighs 5 pounds!!! She's had a great day.

  • Wednesday, January 19, 2011 9:46 PM, CST
    Oh this snow! A Big Thank You to Angela for the baby clothes and equipment. It means so much to us. We love you! i had so much fun putting them in her closet!

    Yesterday she weighed 5.3. her feedings are now being feed for 30 minutes instead of an hour. She also got moved down to a 1.5 liter cannula instead of the 2 liter (high flow). She moved up a size in binkys and she is learning how to suck them and keep them in all by herself. The discharge lady also came in to talk to us about preparing for her discharge. Yesterday, All I did was cry. She is growing up so fast and my dreams of bringing her home are finally starting to happen!

    Today(1-19-11) Olivia had her eye exam. They said so far she doesn't need eye surgery and they will check her again next week. She's had a great day. Her oxygen levels are still great and she is having fewer and fewer Dsats. She weighs 5.4 pounds tonight!

    Team Olivia Jean for the March of Dimes Baby walk is coming along greatly! I'm so excited for the Walk and We can't thank everyone enough!

  • Thursday, January 20, 2011 10:46 PM, CST
    Today was a big day for Olivia. Her oxygen needs are at the same level they have been for the past few days. So the doctor moved her to a 1 liter cannula! This means she can now learn how to eat from a bottle! We asked the doctor to be sure to schedule her to start at a time we can be there.

    They are also weaning her off of her isolete bed! She should be in a bassinet in a day or so. She also got to take her first tub bath tonight! She was a little upset at first, but after a while she really enjoy that warm water. The nurse missed weighing her at her 8'clock feeding and will do so at her 11'clock feeding.

    She is growing up so fast and has been making huge improvements the last couple of days. Keep it up my little princess!           

  • Saturday, January 22, 2011 7:53 PM, CST
    Olivia is up to 5 pounds 9 ounces(friday)! She was at 5 pounds 6 ounces on thursday! I can't wait to see what her weight is tonight (saturday). Friday we got to meet with the Ocupational Therapist and learn some oral stimulation with Olivia in preparation of feeding. She wasn't able to feed Friday becasue her breathing is too fast.

    Today was another big day for Olivia! She is now sleeping in a big girl crib! They are watching her tempature to make sure she doesn't get to cool. if she gets to cool her body will start burning calories to help keep her warm and she'll be moved back to an isolete.

    Olivia also got to try and eat from a bottle for the first time today! I think she got more all over her face then she did in her tummy. But she was so cute trying to eat!

    Olivia also had her first hearing test today. Her right hear passed at 100% and her left ear was 90%. They will retest her left ear on Monday. The lady doing the screen said it was no biggie.

    She also gets another headscan on her brain on Monday to check and make sure the bleeding is still stopped and to check the size of the venticles.

    Things are moving very fast for Olivia. And I can't wait!!             
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